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Director/Sr. Director, Patient Advocacy And Centricity - 2397
Company | Editas Medicine |
Address | Cambridge, MA, United States |
Employment type | FULL_TIME |
Salary | |
Category | Biotechnology Research |
Expires | 2023-08-30 |
Posted at | 8 months ago |
Description
- Lead the development and execution of strategic plans for engaging local and global patient communities to support the advancement of gene edited medicine in sickle cell disease and beta thalassemia, from clinical development to product approval, launch, and beyond
- Ensure high-quality communications materials are produced in a timely, accurate manner, such as presentations, patient materials, Q&As, etc.
- Analyze the external stakeholder landscape to identify and prioritize potential partner organizations and individuals
- Effectively manage budget and direct advocacy-related requests for funding (charitable donations, sponsorships, and disease awareness events), ensuring all advocacy funding requests are reviewed according to compliance policies
- Be the key relationship manager for patient advocacy groups; lead and facilitate regular communications to advance mutually beneficial priorities
- Lead initiatives to understand, document, and communicate the patient perspective; including advisory boards, patient perspective research, etc.
- Identify, initiate, and oversee strategic patient advocacy initiatives and partnerships related to informing, advancing and expediting research, delivering community education, supporting access to appropriate care, and addressing policy barriers
- Leverage patient insights learned from the patient community and serve as internal consultant to champion and further incorporate patient perspectives into all appropriate initiatives, including disease education programs, clinical trial design, research collaborations, and corporate communications.
- Represent the company at external advocacy group meetings, make presentations to patient audiences
- Ensure adherence to legal and compliance frameworks that enable the company’s relationships with advocacy stakeholders to be respectful and appropriate
- Bachelor’s degree required; advanced degree preferred (e.g., MS, RN, PhD, or MD)
- Demonstrated knowledge of the biopharmaceutical industry, including deep understanding of the Legal, Regulatory, and Compliance environment, including a strong understanding of guidelines and best practices for patient advocacy engagement in the US
- Minimum of 8 years of relevant patient advocacy, communications, commercial, or related experience in the biopharmaceutical industry
- Highly motivated individual with the flexibility and creativity to excel in a fast-moving, dynamic, small-company environment
- Strong leadership skills with a proven ability to collaborate effectively with internal and external stakeholders at all levels
- Experience leading patient advocacy engagement activities for pre-commercial investigational medicines
- Must be willing and able to travel (approximately 10-20%) and regularly meet with patient advocacy organizations in the US (as needed)
- Prior experience engaging with patient communities in the Hematology therapeutic area/gene therapy
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