Director Of Research Jobs

Are you looking for a mission-based, dynamic role? Interested in working with a motivated, thoughtful, creative, and friendly team to make a real difference in peoples’ lives?

Reporting to the Executive Director of Research, this position will generate new project ideas and independently execute programs with minimal supervision. As part of a driven and dynamic leadership team, the Director of Research will assist in the annual planning process and development of ARC programs of work, including identifying strategic opportunities, conceptualizing new project plans, developing existing programs of work, and auditing and evaluating program performance. The Director will empower, engage, and develop a small team, fostering a culture that is collaborative and encourages innovation, action, and impact.

“The Amyloidosis Research Consortium’s work bringing together patients, clinicians, researchers, government agencies, and drug companies is vital to extending the lives of those living with this rare disease.”

— Congressman Jake Auchincloss (D, MA-04)

About ARC

The Amyloidosis Research Consortium (ARC) is a mission-based, highly agile organization founded in 2015. A 501c(3) nonprofit, ARC harnesses the power of collaboration and innovation to advance science and both improve and extend the lives of those with Amyloidosis. We are dedicated to improving the lives of amyloidosis patients by transforming the way research is being done. We build collaborations across industry, research, clinical care, and regulatory to address unmet need and accelerate the discovery of new treatments. Our dynamic teams bring patient support and research together to create the most significant impact for patients and ensuring they have access to the best quality care and information.

Amyloidosis is the term for a group of rare diseases in which an abnormal protein misfolds and deposits as amyloid in organs and tissues, causing damage and eventually organ failure. There are different types of Amyloidosis that impact patients and caregiviers in varying ways. These types differ in their biochemical nature and natural history. Some are acquired, and others are inherited. In the United States, approximately 4,000 people develop Amyloidosis each year. It is currently recognized to be wildly underdiagnosed, and therefore that number is expected to rise significantly.

Since it’s founding in 2015, ARC has contributed to the approval of 5 new treatments for amyloidosis — the first FDA-approved treatments for the disease.

About the Position

The ideal candidate will be a mission-based self-starter, with the ability to positively manage and empower teams, have an in-depth understanding of the drug development continuum, as well as experience partnering with a variety of different stakeholders, including from academia, regulatory, life science companies, and medical professionals, to design and implement rigorous research programs that inform and guide healthcare bodies, clinical trial design, and patient experience. This candidate must be a strategic thinker that can identify new opportunities and successfully build, mobilize, and manage programs to achieve collective impact and shared goals.

The Director will be responsible for:

• Driving and contributing to proposal development and building relationships and opportunities across stakeholder groups
• Development of a multifaceted data sharing program that will unify and catalyze research across the community
• Plan, manage, and continue to develop the FDA’s only public private partnership (PPP) with a rare-disease non-profit, known as the Amyloidosis Forum
• Development and evaluation of disease specific patient reported outcome (PRO) measures for amyloidosis
• Leading the execution of a portfolio of prioritized research programs designed to strategically push amyloidosis research and treatment forward
• Community research initiatives aimed at better understanding amyloidosis patient experiences, perspectives, and outcomes, while identifying barriers that lead to health disparities in minority patients with cardiac amyloidosis
• Partner with key stakeholders across industry, academia, non-profits, research funders, health care providers, and within the community of patients, to ensure that ARC’s research programs are of the highest quality and inform drug development and broader research efforts across amyloidosis
• Be responsible for the day-to-day implementation of programs, operationalizing projects from concept development through execution and completion, identifying funding opportunities for each of the above programs

“ARC in partnership with FDA provides a unique environment for national and international patients, academic, industry, patient advocacy, and regulatory groups to tackle the challenges faced by amyloidosis patients.”

— NIH Review Board

Skills and Experience

• Advanced degree (Master’s or higher) preferred, with 7-10+ years of progressive responsibility and experience in clinical research, rare disease, medical technology product development, public health, epidemiology, and/or life science industries.
• Knowledge of fundamentals of health outcomes/human subjects research principles and good clinical practices.
• Experience designing and executing or overseeing human research projects; comfortable with quantitative and qualitative data and familiarity with analysis methods.
• Ability to be flexible, compassionate, and creative, while having a sense of humor.
• Experience utilizing MS Office, Salesforce, and project management tools such as Wrike, Smartsheet, or Microsoft Project.
• Highly organized, very detail-oriented, proactive and takes initiative. Ability to perform and prioritize multiple tasks, exercise good judgment, and quickly identify and resolve problems.
• Direct experience managing and empowering a team for growth and high-level execution
• Strong interpersonal skills and the ability to build positive and encouraging relationships with internal staff, external experts, and other stakeholders to collaborate on programs of work.
• Passion for non-profits, health equity, patient engagement, and cross-sector collaboration.
• Demonstrated experience with communicating science to different audiences and through different media, including websites, emails, presentations, and publications.
• Ability to work independently and collaboratively as part of a team within a dynamic work environment that includes virtual teams.
• Experience and demonstrated ability to balance and manage multiple priorities, projects and deadlines; ownership of the work and outcomes.
• Fluency with scientific terminology and comfort facilitating and synthesizing scientific discussions with leading experts.
• Demonstrated track record of successfully designing, managing, and delivering programs through cross functional teams in a positive work culture.

This is an exciting opportunity to work at a growing organization, with a team that values a diversity of experience and demonstrates an unwavering commitment to the amyloidosis community.

How To Apply

Applications are reviewed on a rolling basis. To apply, please send a resume, cover letter, and writing sample to Kevin Palmer at [email protected]. Emails without a cover letter and writing sample will NOT be considered.

Please ensure that your resume, cover letter, and writing sample are sent as Word or PDF documents with the titles “your name cover letter”, “your name CV”, and “your name writing sample.” Please put “Director of Research – Your Name” in the email subject line and let us know where you saw the post advertised. Thank you!

Additional Information

Office Hours & Requirement

This position is full-time, exempt. 40 hours per week, Monday – Friday 9-5 pm; opportunity to flex workday schedule to meet employee needs.

ARC will require that all employees are vaccinated with exceptions for medical and religious accommodations. ARC may require proof of vaccination. This role may start as a remote position but will transition to a hybrid working arrangement of 40% on-site at our Newton office. Preference given to applicants located in Greater Boston Area.

Interview Process

Please note that we are currently conducting the majority of interviews and onboarding remotely and virtually. We appreciate your understanding.

Benefits Package

We offer a competitive benefits package including generous paid time off, health insurance, dental, vision, Long Term Disability, Life insurance, and more.

• Others such as Employee Assistance Program (EAP), Worker’s Compensation, and more.
• Life/Disability: 100% employer-paid Life and AD&D plan, and Long-term Disability plan.
• Paid Time Off: Generous paid time off including holidays, sick leave, and vacation time.
• Flexible Spending Accounts (FSA): Offer both Health FSA & Dependent Care FSA.
• Medical/Dental/Vision: We offer a full range of contributory medical plans, dental & vision plans; all coverage begins as of your start date, no waiting period for new hires.

Equal Employment Opportunity

We are proud to be an equal opportunity employer – and celebrate our employees’ differences, regardless of race, color, religion, gender, sexual orientation, gender identity, national origin, age, disability, or Veteran status.